Welcome to the premier edition of the Patient Engagement Research Council (PERC) library. The library showcases PERC publications, including manuscripts and congress posters and presentations. The purpose of this resource is to highlight the breadth of patient-involved research across therapy areas and appreciate the insights garnered from PERC discussions.
Congress
Patient-reported experience related to aspects of quality of life after cystectomy from an exploratory focus group
Nida Imran, Wesley Peters, Karen Fixler, Priyanka Madireddi, Lisa M Shea, Andrea Ireland
Congresses
Treatment decision-making in patients diagnosed with multiple myeloma
Doris K Hansen, Todd Bixby, Karen Fixler, Lisa Shea, Christine Brittle, Kimberly Brunisholz, Yi-Hsuan Liu, Stephen Huo
Journals
Patient perspectives on social and identity factors affecting multiple myeloma care: Barriers and opportunities
Natalia Neparidze, Amandeep Godara, Dee Lin, Hoa H Le, Karen Fixler, Lisa Shea, Stephanie Everson*, Christine Brittle, Kimberly D Brunisholz
Healthcare (Basel). 2024;12(16):1587. PMID: 39201146 (August 9, 2024)
Impact of social needs and identity experiences on the burden of illness in patients with multiple myeloma: A mixed-methods study
Natalia Neparidze, Amandeep Godara, Dee Lin, Hoa H Le, Karen Fixler, Lisa Shea, Stephanie Everson*, Christine Brittle, Kimberly D Brunisholz
Healthcare (Basel). 2024;12(16):1660. PMID: 39201218 (August 20, 2024)
*Patient author
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