Immunology PERC Publications Library
Immunology PERC Publications Library
Welcome to the premier edition of the Patient Engagement Research Council (PERC) library. The library showcases PERC publications, including manuscripts and congress posters and presentations. The purpose of this resource is to highlight the breadth of patient-involved research across therapy areas and appreciate the insights garnered from PERC discussions.
Inflammatory Bowel Disease
Journal
Journal of the American Pharmacists Association
How can pharmacists better support patients with chronic diseases? The patient perspective
Lakesha Butler, Steven Zona, Aarti A Patel, Christine Brittle, Lisa Shea
J Am Pharm Assoc. 2023;63(6):1776–1784.e3. PMID: 37696490 (September 9, 2023)
Myasthenia Gravis
Congresses
MDA 2023 Dallas, TX, USA; March 19–22, 2023
Design and Early Insights from a Generalized Myasthenia Gravis (gMG) Patient Engagement Research Council
Jacqueline Pesa, Gabrielle Geonnotti, Wesley Peters, Zia Choudhry, Oluyemisi Falope, Lisa Shea
MDA 2024 Orlando, FL, USA; March 3–6, 2024
Partnering with patients and care partners to guide the design of a generalized myasthenia gravis real world study
Bruce West*, Maria Ait-Tihyaty, Catherine Ferrante, Jacqueline Pesa, Zia Choudhry, Gabrielle Geonnotti, Louis Jackson, Lisa Shea
MGFA AANEM 2023 Phoenix, AZ, USA; November 1–4, 2023
Partnering with patients and care partners to guide the design of a generalized myasthenia gravis real world study
Bruce West*, Maria Ait-Tihyaty, Catherine Ferrante, Jacqueline Pesa, Zia Choudhry, Gabrielle Geonnotti, Louis Jackson, Lisa Shea
NORD 2023 Washington, DC, USA; October 15–17, 2023
Patient and care partner preferences related to treatments for myasthenia gravis
Pushpa Narayanaswami, Raghav Govindarajan, Allison Foss, Jacqueline Pesa, Louis Jackson, Gabrielle Geonnotti, Lisa Shea, Zia Choudhry, Kathleen L Deering, Margaret Yung, Jamie Sebaaly, Wesley Peters, Melina Taylor
Journals
Health Science Reports
Patient and care partner perspectives and preferences related to myasthenia gravis treatment: A qualitative study
Margaret Yung, Pushpa Narayanaswami, Jacqueline Pesa, Zia Choudhry, Louis Jackson, Kathleen L Deering, Jamie Sebaaly, Jordan Richardson, Josh Feldman, Wesley Peters, Melina Taylor, Allison Foss, Bruce West*, Lisa Shea, Gabrielle Geonnotti, Raghav Govindarajan
Health Sci Rep. 2024;7(9):e70081. PMID: 39323457 (September 24, 2024)
Health Science Reports
Design of and Early Insights from a Generalized Myasthenia Gravis Patient Engagement Research Council
Gabrielle Geonnotti, Jacqueline Pesa, Wesley Peters, Melina Taylor, Zia Choudhry, Oluyemisi Falope, Marquetta Price*, Lucy Baxter*, Bruce West*, Lisa Shea
Health Sci Rep. 2024;7(12):e70230. PMID: 39698529 (December 17, 2024)
Warm Autoimmune Hemolytic Anemia
Congresses
NORD 2024 Washington, DC, USA; October 20–22, 2024
A glimpse into the patient experience: Stressors described by individuals living with wAIHA
Caroline Irene Piatek, Rachelle D Rodriguez, Zia Choudhry, Louis Jackson, Emily Clifford, Lisa Shea, Nora Sandorfi
NORD 2025 Washington, DC, USA; October 19–21, 2025
Partnering with patients to guide the development of impactful educational resources for Warm Autoimmune Hemolytic Anemia (wAIHA)
Azreen Iqbal*, Zia Choudhry, Lisa Shea, Emily Clifford, Surbhi Shah, Nora Sandorfi
*Patient author
Connect with us
Connect with us
Would you like to clear and leave your conversation? Message history will be lost.